Ruby / WVU Medicine review: Treatment stage 4 cancer

I was diagnosed with metastatic stage 4 tnbc in June 2020. I’m a USN vet and my local veterans health admin didn’t have any oncologist to treat me so they outsourced my care to Ruby memorial hospitals cancer center. Through a hipaa violation between Ruby and my pcp at the va, I was forced to fight cancer, treatment, surgery, radiation; EVERYTHING on merely Tylenol for comfort. I also suffer a pretty severe tbi and since I had to get cancer during a global pandemic and no one could go with me to help me understand therefore I was brushed aside and ignored with my worries. I was mistreated and neglected. By the time surgery came around I was looking to postpone removing my very aggressive cancer because no way in Hannah did I think I was physically or mentally strong enough to do this alone on only Tylenol. Three days before my surgery was scheduled my surgeon, lupinacci, called me to let me know she would make sure I was sent home with something for the pain after she did my full double mastectomy and boy was I relieved. So much so I dropped to my knees sobbing, so very thankful someone had heard my pleas. I went through with the surgery and waited to be discharged expecting to see lupinacci. When she didn’t show, I requested that the hospital call her to see what was going on. When she finally called me I asked her what was going on to which she replied she never promised such a thing and I would not be getting anything for my pain. To “deal” with it. My oncologist, Salkeni, called my husband and had a very long in depth conversation about what terminal meant and that he desperately needed to get my affairs in order because I had the most aggressive cancer he had ever seen coming from the size of a small pea to a large softball in mere 3 months. No one would talk to me because I was deemed to irrational because of my tbi that I was ignored. I put in a request so that my husband could accompany me to infusions and henceforth be able to explain to me what was going on. The request was denied so I continued to be brushed aside. The pain was so intense but I did it. And then radiation. On only Tylenol. I couldn’t finish. It was to much. I begged for someone to help me with the pain. No go. I was sent to a plastic surgeon of wvu medicines and was told for 6 months that I was the perfect candidate for every option. All I needed to do was pick my medium. No delay I’ve always chosen saline. Surgeon says go home and think about it 5 more times and I always come back with saline. So when he tried to make me go home and discuss it over with my husband yet again, I leaned in close to him noticing his red eyes and his very very slow monotone voice manner and I asked him point blank if there was a specific reason he was stalling and putting off my reconstruction? His reply was simple. He leaned back and said that he was sorry. He was referring me out of his care. I was so upset I walked out. Six months he has been lying to me. And because I asked him a legitimate question about his progression… (and his soberness) I was being dicked over. Again. So I called the hospital in question, wvu’s uhc in clarksburg and spoke with the director over plastics discussing the six month deceiving of me and also I requested a drug test be done on the surgeon in response to his behavior. The director apologized and agreed. I gave him two weeks thinking he would have the courtesy to call me with any results. The surgeon had opted to take an early retirement instead of the drug test. I went to a non wvu medical plastic surgery department at a different hospital away from the area so I can get away from wvu personnel. The head of plastics at that hospital apologized to be greatly that I was no longer a candidate for any reconstructive services. The damage to my chest was to great. He regretted to inform me that even cleaning up the “mess” I was left with would leave me in even more painful discomfort than I was currently facing. I tried at that point to contact the hospital at Ruby memorial executive offices because of the medical neglect, discrimination of my severe tbi, MISDIAGNOSED, lied to in order to operate, the hipaa violation that started it all and the [censored]ery that was now my chest. The refused to speak to me. Again and again I tried to get someone to listen to me. No one would except my calls or emails. Nothing. I finally got fed up and was trying to get anyone associated with wvu medical to hear my story. Any attempt gets shot down by their legal representative Mr Boggs who sent me a message telling me he would be filing harassment charges if I continued to contact the hospital staff for a resolution. No one will acknowledge what they did to me. And no one will help me sue them because of the government being involved because I’m a veteran. So what if I’m a veteran. Hell that should mean I get amazing care and a pat on the back accompanied by a “thank you for serving” but that’s not at all what I got. I was a burden. A nascence. I originally asked for a lot of money. I deserve it for what they’ve done to me. Never is all the answer I got. So my last reply indicated we would call it even if they would give enough compensation to purchase a lil home for my husband and daughter to have when I inevitably passed away due to their [censored]ery. I was sent the harrassment threat again. I was supposed to be prescribed a medicine that would act like a shield when my cancer came back because they knew it was going to and rather quickly. I had to search for a new oncologist at a new hospital but the old oncologist was the ne ones “mentor” so I couldn’t get adequate care there either. And when the time came to get another mass cut out of me, the surgeon at that hospital put me under but didn’t numb the area so when I woke up from said surgery I was in incredible pain. His response was I was the only one to complain in 27 years of him doing the surgery like that. No. Unbelievable. He also works for the original hospital as a surgeon so again I was treated poorly because of the association of Ruby memorial hospital and their cancer center.

No one will listen and they made sure to stall me out until after the deadline for two year mark of statute of limitations ran out. They have made it to where I no longer have an oncology support team because I can no longer find an oncologist with any moral standing to care for me. Cancers sligan is no one fights alone. Well I sure as hell was forced to do it all ALONE. help me. Please