This is beyond horrifying. I wonder if an independent case-manager / patient advocate would help, if you can afford one. If not, the Patient Advocate Foundation was helpful when I was helping my dad with complications from diabetes. They offer free help regardless of income -- I believe paid for by donations. I was able to resolve the biggest issues right after reaching out, so I didn't use their services, but the person I spoke with was kind, understanding, and knowledgeable. I hope this helps.